Navigating Kidney Disease

Here are some links to websites to help you navigate kidney disease

National Kidney Foundation (NKF)

NKF is the largest, most comprehensive, and longstanding patient-centric organization dedicated to the awareness, prevention and treatment of kidney disease in the United States.

The National Kidney Foundation is revolutionizing the fight to save lives by eliminating preventable kidney disease, accelerating innovation for the dignity of the patient experience, and dismantling structural inequities in kidney care, dialysis and transplantation.

This site has multiple resources including kidney health, nutrition, support, insurance options and communities.

American Association of Kidney Patients (AAKP)

The Independent Voice of Kidney Patients Since 1969™

As the oldest and largest, independent kidney patient organization in the U.S. – AAKP is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement and the fostering of patient communities. 

This site has multiple resources for people with kidney disease of all ages from education to recipes.

National Institute of Diabetes and Digestive and Kidney Disease (NIDDK)

The health information here is informed by NIDDK research, reviewed by doctors, and provided to help you understand the diseases and conditions you or your loved ones may face.

Polycystic Kidney Disease Foundation

Organization in the U.S. solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD). They fund research, education, advocacy, support, and awareness on a national and local level.

American Kidney Fund (AKF)

The American Kidney Fund fights kidney disease on all fronts as the nation's leading kidney nonprofit. Works on behalf of the 37 million Americans living with kidney disease, and the millions more at risk, with an unmatched scope of programs that support people wherever they are in their fight against kidney disease — from prevention through post-transplant living.

United Network for Organ Sharing (UNOS)

UNOS is the mission-driven non-profit serving as the nation’s transplant system under contract with the federal government.

UNOS leads the network of transplant hospitals, organ procurement organizations, and thousands of volunteers who are dedicated to honoring the gifts of life entrusted to us and to making lifesaving transplants possible for patients in need.

Working together, UNOS leverages data and advances in science and technology to continuously strengthen the system, increase the number of organs recovered and the number of transplants performed, and ensure patients across the nation have equitable access to transplant.